What is it like to live with fibromyalgia?

Chronic Fatigue, Fibromyalgia

What is it like….to live with Fibromyalgia? Frequently I’m asked this question and just as often I’m thinking what is it like to not live with it? You see when something becomes a part of your everyday life for as long as ‘fibro’ has been in ours (I include my family in all of this); life is just ‘normal’. If I really paid attention each day to how my life has been impacted, I would always be living in the past. You see living with the condition does not mean spending every single morsel of your day reliving your diagnosis over and over, it means learning to manage it, learning the triggers, finding treatments that suit you and above all consistently picking yourself back up to try again.

Tonight, I find myself sat here while the rest of the house is sleeping with my head spinning round and round with ideas after getting more and more uncomfortable the more my body heat rose. While all of that has been going on, I have realised just one possible answer to that ever so frequent question I hear in the mornings “how come you are down here again?” referring to the living room. My answer is always just “I couldn’t sleep”, paying no attention to the actual why.

One of the most embarrassing difficulties I face is the incessant inability to regulate my own body temperature and tonight as I lay there with all intentions of sleeping, the temperature began to rise, the fingers began to swell and the nose breathing became a little bit harder as the vessels in my nostrils too decided that they were warm and needed to expand. The only problem with that is that I can’t breathe, I get uncomfortable, the more uncomfortable I get, the warmer I get and around we go again.

Open a window I hear you say…now that would be awesome, I love a cool breeze, but sadly the inability to regulate the body temperature means very particular amounts of covering and the outside covers can’t be too warm that I can’t have the covers over or too cold that they have to be tucked right in at the sides. What sounds simple isn’t always so it’s about finding a way that works for you!

So here I am sat on the sofa typing this for you lovely lot to read, with the aim of giving you a little insight to just two of the symptoms of Fibromyalgia – insomnia and inability to regulate body temperature.

If you think you may have symptoms of the condition or you do have the condition and would like to talk about, don’t hesitate to drop me a message or give me a call.

Stacey x

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